Improving Cancer Tracking Today Saves Lives Tomorrow: Do States Make the Grade? (2003) The Trust for America’s Health (TFAH). 24 pages.
The 2003 Trust for America’s Health made six recommendations to improve cancer tracking:
- Expand data linkage activities.
- Provide additional funding for cancer tracking.
- Make data available to the public while protecting patient confidentiality.
- Improve reporting time.
- Strengthen public accountability and enforce performance standards.
- Institute of Medicine (IOM) should conduct a study on the federal role in cancer registries.
These reports reveal that there is no consistency from state to state. Further, of the states that do have protocols of response to disease cluster concerns, all use some version of the CDC’s outdated and insufficient 1990 Guidelines for Investigating Clusters of Health Events.